tag:blogger.com,1999:blog-30969977.post690870997036138240..comments2023-08-23T00:51:06.852-07:00Comments on A Deaf Mom Shares Her World: Doing an Article on Cochlear ImplantsKaren Putzhttp://www.blogger.com/profile/09098620301550608119noreply@blogger.comBlogger24125tag:blogger.com,1999:blog-30969977.post-48372070911976054162007-06-19T05:56:00.000-07:002007-06-19T05:56:00.000-07:00Sheila,There could be a couple of factors in play ...Sheila,<BR/>There could be a couple of factors in play here. I would encourage the family to seek a second opinion from another implant center if there's any question about whether the implant is working. I have worked with several families who have gone to different providers and discovered what is called "soft failures". The implant may need to be re-mapped, electrodes adjusted or therapy Karen Putzhttps://www.blogger.com/profile/09098620301550608119noreply@blogger.comtag:blogger.com,1999:blog-30969977.post-14757171018752154942007-06-19T05:14:00.000-07:002007-06-19T05:14:00.000-07:00hi, to anyone who can helpim working in childcare ...hi, to anyone who can help<BR/>im working in childcare and am caring for a child with a ci. Right now he is 3 and half years old and has been completly deaf since he was born. he has had the ci for over a year now and there doesnt seem to be any improvment in his hearing at all as yet. i dont know much about ci and would like to know how much if any will his hearing improve and if so when should Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-30969977.post-41181874608207472122007-03-01T07:52:00.000-08:002007-03-01T07:52:00.000-08:00Karen,Thanks for your comment on our blog. I'm gla...Karen,<BR/><BR/>Thanks for your comment on our blog. I'm glad you came across it--and I'm glad, in return, that I came across yours! Thanks for sharing our blogsite with others. We love getting the word out there and sharing our journey with others.<BR/><BR/>That's interesting that you've worked with another family with a daughter who has CHARGE. Do they belong to the CHARGE listserv? It's a Leslie, Arlin and Katie Kauffmanhttps://www.blogger.com/profile/12611876622774840845noreply@blogger.comtag:blogger.com,1999:blog-30969977.post-34248851413911081622007-02-27T17:11:00.001-08:002007-02-27T17:11:00.001-08:00Karen, even though I am the parent of a child with...Karen, even though I am the parent of a child with a cochlear implant who is doing extremely well, I do think it is important to educate people on ALL aspects of this technology, whether it is good or bad. Good luck.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-30969977.post-28852394566700587052007-02-27T17:11:00.000-08:002007-02-27T17:11:00.000-08:00Karen, even though I am the parent of a child with...Karen, even though I am the parent of a child with a cochlear implant who is doing extremely well, I do think it is important to educate people on ALL aspects of this technology, whether it is good or bad. Good luck.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-30969977.post-69338052668491905672007-02-26T17:25:00.000-08:002007-02-26T17:25:00.000-08:00Hi Karen,As a fellow blogger and journalist on hea...Hi Karen,<BR/><BR/>As a fellow blogger and journalist on hearing related issues, I want to commend you on a great blog. <BR/><BR/>As a cochlear implant user, a parent of a child with one and also the leader of the HearingExchange community, I think I understand why there's such an uproar over your proposed article. People get nervous when they hear that someone is interested in hearing only the "Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-30969977.post-59413481880344625632007-02-25T21:44:00.000-08:002007-02-25T21:44:00.000-08:00Here are two sites I, as someone with a disability...Here are two sites I, as someone with a disability have found useful.<BR/>http://www.assistivelivingmobility.com/<BR/>http://www.workingforindependencetogether.org/<BR/><BR/>MillieAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-30969977.post-13908990005987271062007-02-21T11:04:00.000-08:002007-02-21T11:04:00.000-08:00Thank you for taking on a daunting task.I taught e...Thank you for taking on a daunting task.<BR/><BR/>I taught enough deaf students with CIs to know that life with that special technology can be great, good, okay, and all the way to just plain horrible. The only people who can tell that story, are those who have experienced it. Personally, I think we have done our children a great disservice in giving all of these children the "magic" CI, more ~Sheliahttps://www.blogger.com/profile/10452434203513909008noreply@blogger.comtag:blogger.com,1999:blog-30969977.post-90426432599395868922007-02-21T05:06:00.000-08:002007-02-21T05:06:00.000-08:00No time to say what I want to say in response to y...No time to say what I want to say in response to your post but "damn the torpedoes, full speed ahead" and all that. I, like you, am heading for a Cochlear Implant myself one of these days and one of the things I most appreciate is being able to read about the other side of things. Not just the ones that work. I do believe I'm smart enough to know that not every single implant is going to "turn Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-30969977.post-25377604339273957592007-02-20T21:57:00.000-08:002007-02-20T21:57:00.000-08:00The reason I asked you to contact me is cuz you do...The reason I asked you to contact me is cuz you don't have a contact e mail in your blog.Unknownhttps://www.blogger.com/profile/16921338174611442710noreply@blogger.comtag:blogger.com,1999:blog-30969977.post-40795837101797120242007-02-20T14:29:00.000-08:002007-02-20T14:29:00.000-08:00Aww, Dennis that was nice. :)Aww, Dennis that was nice. :)Karen Putzhttps://www.blogger.com/profile/09098620301550608119noreply@blogger.comtag:blogger.com,1999:blog-30969977.post-4475343956807881952007-02-20T14:28:00.000-08:002007-02-20T14:28:00.000-08:00Thanks Jamie, I will check out your article.Thanks Jamie, I will check out your article.Karen Putzhttps://www.blogger.com/profile/09098620301550608119noreply@blogger.comtag:blogger.com,1999:blog-30969977.post-50030117707698622912007-02-20T14:10:00.000-08:002007-02-20T14:10:00.000-08:00As President of West Suburban Association of the D...As President of West Suburban Association of the Deaf (www.wsadeaf.org) and Legislative Chair of Illinois Association of the Deaf(www.iadeaf.org) and Deaf Commissioner of Illinois Deaf and Hard of Hearing Commssion (www.idhhc.state.il.us), very involved with advocacy, I loved visiting Karen's blog. I have encouraged many people to visit her blog. I even nominated her to DEAFREAD for best blog.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-30969977.post-61887762971311951072007-02-20T13:25:00.000-08:002007-02-20T13:25:00.000-08:00I have a child who so far has a successful Ci. Gra...I have a child who so far has a successful Ci. Granted, he's only had it for 4 months, so who knows if it will always work for him. This article you're working on is important for parents like me because we need the reality check, hey, someday it might actually not work, then what are you going to do? <BR/><BR/>That aside, I'm so excited to see my little boy progress with his signing. He's not Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-30969977.post-45641036059398902462007-02-20T10:50:00.000-08:002007-02-20T10:50:00.000-08:00one issue I will agree with Mishka on ! It's no ...one issue I will agree with Mishka on ! It's no good seeking out the negative this isn't showing anyone a balanced viewpoint. There are pros and cons let's see them, or it might just be viewed as another 'rant' by the signing community again.<BR/><BR/>I've read loads of CI views, and have deaf friends who don't find any issue with them. I also have read 'Deaf' views pronouncing CI's give you Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-30969977.post-87708540297602884962007-02-20T10:29:00.000-08:002007-02-20T10:29:00.000-08:00Stick to your guns, Karen. Parents and kids have ...Stick to your guns, Karen. Parents and kids have the right to know both sides of the issue!groovyoldladyhttps://www.blogger.com/profile/07971936982658984234noreply@blogger.comtag:blogger.com,1999:blog-30969977.post-41207940623219790252007-02-20T10:00:00.000-08:002007-02-20T10:00:00.000-08:00Excellent post - and there should always be a list...Excellent post - and there should always be a listing of two sides, but as long as it is not OVER-DRAMATIC. I also have a CI - and I have encountered people who have had success and failures (I wouldn't necessarily call them failures but I think their expectations were too high so they considered them failures). But keep up the good work - I am definitely interested in your article!Billy Kochhttps://www.blogger.com/profile/08325268547598821261noreply@blogger.comtag:blogger.com,1999:blog-30969977.post-38979602117476743812007-02-20T09:45:00.000-08:002007-02-20T09:45:00.000-08:00I look forward to seeing your article. Hope it wil...I look forward to seeing your article. Hope it will be posted on the web. Meanwhile, here is an article I did awhile ago, <A HREF="http://deafness.about.com/cs/cochlearfeatures/a/reimplantation.htm" REL="nofollow">Cochlear Implants - Reimplantation and Extrusion</A>, that might be helpful with your research for the article.<BR/><BR/>Jamie BerkeAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-30969977.post-18685988078171329522007-02-20T09:06:00.000-08:002007-02-20T09:06:00.000-08:00I see you and IAM as progressive - willing to fact...I see you and IAM as progressive - willing to factor in both sides of the experience. It's unfortunate you will come across many that are a deterrent to that healthy process of dialog. The walls they build, I call that "denial." Whatever reality they believe in or fed themselves into, comfort them. I watched a promo video on CI last semester and my professor said this video shows only the drmzzhttps://www.blogger.com/profile/00494918938276567340noreply@blogger.comtag:blogger.com,1999:blog-30969977.post-52719549901982953352007-02-20T08:57:00.000-08:002007-02-20T08:57:00.000-08:00Disclaimers are offered before every surgery to pr...Disclaimers are offered before every surgery to protect the doctors and the hospital from lawsuits, but at the same time patients are reassured (orally) that complications happen only a tiny, tiny percent of the time and to go ahead with confidence.<BR/><BR/>I agree wholeheartedly that you should tell people about the unsuccessful and the complications. People have a right to know and to weigh Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-30969977.post-67445659086712446162007-02-20T08:08:00.000-08:002007-02-20T08:08:00.000-08:00Oh, jeez. You did the right thing, reporting both ...Oh, jeez. You did the right thing, reporting both the positive and negative aspects of CI You wouldn't be a good reporter if you cover only one side. <BR/><BR/>I know a student who had a CI and it didn't work out for him. I also have few friends who have CIs, with varying results. If you contact me, I can ask them to contact you. Like you and countless others, I like to hear BOTH sides of the Unknownhttps://www.blogger.com/profile/16921338174611442710noreply@blogger.comtag:blogger.com,1999:blog-30969977.post-71061987534056474592007-02-20T07:47:00.000-08:002007-02-20T07:47:00.000-08:00Hi Karen,Very interesting topic! Also, regarding u...Hi Karen,<BR/><BR/>Very interesting topic! Also, regarding use of ASL among those who have the CI, I wholeheartedly agree with IAmMine's comments. In fact, if it's helpful, feel free to quote/reprint the article by Dr. Jerel Barnhart in "On the Fence" as you see fit. (Dr. Barnhart makes EXCELLENT points as to why ASL should be used in conjunction with CIs for young children.)<BR/><BR/>Keep up theAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-30969977.post-53463351004578739372007-02-20T07:18:00.000-08:002007-02-20T07:18:00.000-08:00I agree with you - they are so paranoid with any n...I agree with you - they are so paranoid with any negative information. <BR/><BR/>I think we should be allowed to share what difficulties faced with an implant or even the processor itself.<BR/><BR/>One or two cases? That’s funny – I’m sure there are many but they wouldn’t come forward, that would be my guess.<BR/><BR/>I have CI myself and I enjoy it. But it’s NOT what everyone else expects. <BR/>IamMinehttps://www.blogger.com/profile/15337230366443001201noreply@blogger.comtag:blogger.com,1999:blog-30969977.post-2194135617556011082007-02-20T07:09:00.000-08:002007-02-20T07:09:00.000-08:00Karen,By all means, keep me in touch about your ar...Karen,<BR/>By all means, keep me in touch about your articles on CI.<BR/><BR/>Please email me, EgbertPress@mac.com<BR/><BR/>The parents of Deaf children have the right to hear balanced and fair feedback on CI results.<BR/><BR/>Please keep me in touch!.....oh yes, I will be watching for your blog too.<BR/><BR/>John F. EgbertAnonymousnoreply@blogger.com